The rest of you get a gold star for effort.
Or an A if you want.
But what is Marfan's? Basically, it's a connective tissue disorder. Tissues that support various organs in the body may not form or develop as they should. Some people get faulty skeletons, others get hearts that don't work as efficiently as they should, and unsurprisingly I think I got stuck with defective lungs.
There were numerous reasons why I was suspected to have Marfan's. Fairly tall, thin, with elonganted fingers, small chest indentation, narrow face, the collapsed lungs and lung cysts, sleep apnea, general fatigue, poor blood circulation.
It's not surprising that my friends are dubbing this "Slenderman Syndrome".
But as most people would guess, it's the inefficient heart that are the killers in this disease. Weakened heart tissue and valves are not something to be taken lightly. This is why I went for the echocardiogram the other day, to see if my heart has any problems yet.
Lots of people generally go for heart surgery to try and fix things up. The technician for my echocardiogram was telling me how she had a friend who had Marfan's, and said friend needed the surgery so she could give birth safely.
However, I still think the scariest thing about Marfan's is that I could be dead by 30. 30.
Remember, I'm only 22, turning 23 later this year.
Did I mention that Marfan's has no cure?
Luckily, there's heart medication for me (if I should need it) and that'll extend my lifespan to about 70. Not optimal, but still a huge improvement.
My doctor also didn't seem too worried, because a lot of the health problems I have are could simply be due to being so tall and thin. And again, not much they can do for me anyways even if I am diagnosed with Marfan's besides what I'm already doing. Which is dealing with the symptoms as they appear.
I'll have something more concrete in April when I see that specialist. My doctor hasn't called back about the echocardiogram yet so I guess that means everything is fine?